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When All Else Fails, Push Play : The Healing Power of Music

Xavier Rudd

Xavier Rudd follows the sun to the water.

Have you ever been so moved by a song that you look back and think that was a turning point in your life?

I was never really one to be touched by music in a really emotional way, until I reached my thirties. I was a third year university student and sitting in on the first lecture of Working With Indigenous Communities with Tony Kelly, a passionate man who had worked in the NT for 30 years. The only reason I’d taken his elective was out of curiosity – I’d heard that he cried in class. He pushed play on the cassette player (remember those?) and out came Paul Kelly’s From Little Things Big Things Grow. The tears started to form at the corner of my eyes and what followed was five months of no-holds-barred, in-ya-face black history (what I’d never learnt at school) and an invitation to take a long hard look at myself and my whiteness. Yep, it was a turning point. From Little Things… was a tiny seed planted and watered, which led me back to the NT.

Leonard Cohen’s Hallelujah is a beautiful song, but it wasn’t until I watched the journey of the Choir of Hard Knocks culminating in their performance at the Sydney Opera House, that it gave me goosebumps. What Jonathan Welch and the homeless people of Sydney achieved together was nothing less than inspiring. Did you know that Leonard Cohen’s career had reached a low point when he wrote Hallelujah in 1984 and his record company didn’t bat an eyelid at it? Every time I hear it now, the goosebumps return.

I have a colleague, who I worked with just long enough a few years ago to make a spiritual connection through shared values and views about the world. We go months without seeing or talking to each other as we both lead busy and very different lives. However, earlier this year, when I was having a particularly tough time and felt like I had come to a crossroad, I got a call from her out of the blue. All she said to me was, listen to Rudd’s song – Follow Your Heart. When I opened the you-tube clip and and was invited to check “which way is the wind blowing”, tears welled up. Not so much because it became obvious to me what I should do. But because this distant friend, like a guardian angel or something, had delivered this message to me. Another turning point.

And this brings me to my last favourite song – another off Xavier Rudd’s album – Spirit Bird. See if you can get through this one without shedding a tear! Like a fighting warrior, these words provide the inspiration for me to keep going and never give up. I know I’m heading in the right direction.

I can count the number of songs that move me to tears or lift me up out of a low point, on one hand. But that’s what makes them all the more special.

What about you? In hard times, what are the songs that bring you healing? Share them. It could make all the difference to the life of another.

“Music is the art of the prophets, the only art that can calm the agitations of the soul.”   Martin Luther (1483-1546)

Body Drawing: An art therapy approach to healing from chronic pain.

Healing from Chronic Pain or Injury: My 3 Rules for playing the Mind Game

Body Drawing: An art therapy approach to healing from chronic pain.

Body Drawing: An art therapy approach to healing from chronic pain.

This week I sliced my finger. I was cleaning our ceiling fan blades, something I’d been trying to do for months. In the first instance, I fell into a pit of anger and frustration because I couldn’t finish the job. Ruminating, I stared at the ceiling, clasping a bunch of tissues which filled up with blood over my painful little pinkie. To the distracting but somewhat comforting beat of my throbbing pulse, I eventually pulled myself off the sulky road I was heading down, and contemplated how I might now constructively fill in the rest of my day.   I decided to do something I enjoyed – some drawing or painting or both. Half an hour later, I consulted the first aid book locked away in my brain and decided a dose of Betadine and a couple of strong bandaids was all that was required.

Ironically, this is the same process I went through when I popped a disc sweeping up the floor in January. However this injury was much more serious and I haven’t yet fully recovered. I lead an active lifestyle and see the glass half full most of the time, but this pushed me to my absolute limits. The mental anguish of being bed bound is much worse than physical pain and I could have easily slipped into depression, if anger and frustration had gotten hold.  I began thinking about the things I consciously do to give myself the best chance of healing without letting the world crumble down around me. Here are my 3 tips for healing from chronic pain, keeping your spirit intact!

  1. Listen to what your body is telling you to do.

The voices of ‘experts’ in treatment have valuable things to offer but not the only answer. My doctor, physio and chiropractor all had different opinions about my back injury and how it should be treated. The conflicting advice I received was confusing and my back seemed to get worse. Eventually, I refused to do some of the exercises because it didn’t feel right. I had to force my doctor to refer me for an “unnecessary” MRI which revealed a type of degenerative disc disease that he knew nothing about it. I ended up doing my own research to find a path of recovery for myself. In desperation for pain relief, I found an acupuncturist/physio who confirmed what I suspected all along. Don’t do any exercise that causes pain! He cut me back to one exercise and that was the beginning of my recovery, five months after my initial injury.   I know if I ever do this kind of injury again, I have a first aid plan, based pretty much on “Treat Your Own Back”. I also know I have a really strong gut instinct which steers me in the right direction.

  1. Put your mind on a leash.

This is the hardest thing to do when you are in constant pain. Give it some slack and your mind will take off, leaving you feeling powerless. Worry and self doubt tried to convince me that I might never be healthy and strong again. I was also plagued with guilt for lying around and not contributing to the functioning of our family household. A turning point for me came when I created a Body Drawing. On one of my worst days, I lay down and quietly meditated on how my body felt for a few minutes, noticing the pain, tension, and other sensations. Then I took a piece of paper and drew what I had noticed.  Looking objectively at what I had drawn, I knew I had to take positive action to not let my mind dominate, as it was contributing to avoidable tension in my body and inhibiting recovery. The Body Drawing is a good exercise to repeat several times over the course of recovery, so that you can appreciate the positive steps forward you are taking and that change however slight, is happening.

  1. Find creative ways to keep doing things you enjoy.

One of the most difficult things with chronic pain is not being able to do things you love. For three months, I wasn’t able to sit. I either had to lie on my back or stand. And standing for long periods of time wasn’t good either. I became teary and upset at not being able to do the things I normally enjoy like gardening and bike riding (I had just bought a new mountain bike).

Now when I look back, I am grateful for the down time I was forced to take. I taught myself how to set up a business and website and even went to some free business seminars, standing on my feet throughout the whole training.   I wrote my first blog flat out on my back because my thoughtful hubby bought me a bed desk.

It’s important to stay connected to the things you are passionate about, within your limitations. I couldn’t work in the community garden, but I still went along and chatted to the gardeners doing all the hard yakka. I took up new pursuits like Universal Healing Meditation and Playback Theatre which have added value to my healing process. Think creatively and you can find a way, perhaps with a little help from some painkillers now and again!

The Mind Game of healing from chronic pain or injury is a constant challenge. Just keep strong hold of that leash, and breathe.

Darwin Playback Theatre

My Introduction to the Healing Power of Playback Theatre

In February, I was fortunate to hear about some Playback Workshops designed to introduce new and old improvisational actors to the art of PlayBack Theatre. My motivation for attending was personal. I wanted a creative outlet for the rollercoaster of emotions I was carrying from my work.  It was all about me and my needs. If there was some way of expressing the tension that had built up over the past 5 years from listening to other people’s stories of trauma and abuse, in a fun and releasing kind of way, then this was enough. I didn’t really know what I was in for. I didn’t realise I would be the vehicle through which I would hear more potentially traumatic stories and have to literally jump into the storytellers shoes in a physical way. I didn’t realise how much courage I would need to muster to expose the introspective parts of my vulnerable self, while the self critic tried to talk me out of it. That is the journey I am now on.

Jonathan Fox introduced Playback Theatre in 1972 as a vehicle for ordinary people to act out the stories of their community. Although not intentionally a therapy, drama therapists and psychodramatists recognised Playback’s potential as a therapeutic approach. “It is theatre with the power and intention to heal and transform individuals and social groups” (Salas 2009). It has been used with trauma survivors, couples and families, adolescents, people in recovery from addictions or mental illness and other groups.

Darwin Playback Theatre

Darwin Playback Theatre

So how does it work? Well, the stage is set with two chairs to one side for the Conductor and Teller (a volunteer from the audience who is invited to share a story). In the middle of the stage are four boxes (seating and potential props) for four Actors. To the other side, a musician is accompanied by a wide variety of instruments to add musical content to the story. And upstage is a rack of cloth of various colours, for use as costumes or props. The Conductor invites a volunteer from the audience to tell a story. This Teller chooses an Actor to play themselves and for any other key figures in the story. The Actors listen as the Conductor interviews the Teller about the details of the story and most importantly, what emotions were present at the time of the event. The conductor invites the Teller and audience to “Let’s Watch” as the Actors and Musician play back the story as creatively and accurately as they can. The Actors finish their final scene by pausing and looking back at the Teller, anticipating their feedback. If the Teller is troubled by the way their story ends, there is an opportunity for Transformation, as the Conductor invites the Teller to imagine a new outcome and the Actors play back this preferred ending.

The potential healing effects for Tellers may seem obvious but when played out in front of a group of strangers in public, take on a life all of their own. There is the personal sense of affirmation and validation as they tell, hear and watch stories that are significant for them; the feeling of being fully heard and understood by the Actors and through the clapping of the audience; a sense of mastery over an experience that has been hanging around in the background for some time; new insight gained into an issue that has been presented back in a new and creative way; and the cathartic experience of joining in laughter or tears with the audience.

In the short time I have been practising the skills and art of Playback, I have been struck by the potential healing effects for Actors too. In my paid work as a counsellor, my attentive, listening ear was the only tool I could use to acknowledge and validate a story of trauma. With Playback, I can use my whole body, mind and voice in acknowledgement of the courage shown for sharing a personal story amidst strangers. It feels like presenting their story as a gift bound in a bright coloured ribbon, which is unwrapped with gentle curiosity, utter delight or immense relief and profound insight.

To date, I have only witnessed this amongst the cosy and comfortable confines of my PlayBack colleagues, where we share our inner-most personal stories with each other. My inner self critic has successfully sobataged any attempt I might make to step onto the public stage.   But that is a story for another time; perhaps the PlayBack stage? I’ve certainly achieved more than I imaged when I set out on this creative adventure six months ago. Any vicarious trauma or pent up frustrations I carry about the state of the world is unleashed amongst the laughter, silliness and security of my fellow Actors each week during Practice. Playback presents an abundance of other healing opportunities for Actors most of which I’m yet to experience, if I can pluck up the courage to go public.

If this article has inspired you to share a story of Tragic Love or other unresolved Earthly Delights, you might like to come along to our company’s next Fringe Festival performance tomorrow night. I won’t be on stage, but you can experience the healing power of Playback for yourself…..because it’s not all about me.

playback flyer _nReferences:  Salas, J. (2009) ‘Playback Theatre: A Frame for Healing’ in Current Approaches in Drama Therapy, 2nd edn., edited by Johnson D. R. & Emunah R., Charles Thomas, Illinois.

Mandala3

Using Art to Heal from the ‘Bystander’ Trauma of Witnessing Worldwide Disasters

2014 is starting to feel like a tragic year. Two heartbreaking airline disasters are making the world an unsafe place to explore. The actions of uncaring, uncompassionate politicians are shining the international human rights spotlight on Australia. And even our neighbourhood is mourning the loss of unexplained suicide.

Even though none of these events have affected me or my family directly, it feels like my safe and secure ‘cone of comfort’ is slowly being smothered as layer by layer another blanket is added on top. I am heavy and weary. I am trying to breathe. Earlier this year, I was particularly sensitive to what was happening around me. I was even told by my doctor to stop watching the news and using Facebook, as it would depress me too much. I did for a few weeks until my sadness about the world subsided. Momentarily.   You cannot avoid it. You cannot tune out entirely. So what do you do with these feelings that you carry?

It feels like some sort of “bystander trauma”. But this term has been used to describe those who have witnessed their loves ones die or seriously injured at the scene of an accident or the like. So it is probably not the right term to use for those of us watching on as the bystanders suffer.  Then again, some of the images we see on media are pretty graphic.  It practically feels like you’re there.

How can the majority of us who may not be directly affected by tragedy or injustice express our sadness for the grief and suffering of others? How can we express our own feelings of losses…like safety and security in the world….or nationwide compassion towards those being oppressed?

Art is used in a therapeutic context to assist those directly affected by grief, loss and trauma to “confront emotions, overcome depression, integrate traumatic experiences and find relief and resolution of grief and loss” (Malchiodi 2007).  But I believe it is also useful to those of us on the sidelines, watching the tragedy unfold before us and watching the bystanders grieve. The process of making art is a sensory experience, not a cognitive one. It gives us a safe place to express feelings we don’t have the words for or an audience available to listen.

So after the tragedy of MH17 this is what I did.
art

If like me, you’re feeling the weight of the blankets smothering you…watching the violence, the despair and the tears of the world, as you try to draw breath, why not give it a go?

  1. Find a piece of paper. It could be a A4 sheet, scrapbook or journal.
  2. Gather something to draw with e.g. textas, pencils, pastels, paint – whatever you prefer or feels right for you.
  3. Gather some collage materials if you have more time. I used the newspaper with the feature story of the tragedy.
  4. Use the materials in front of you to express your thoughts and feelings in whatever form you choose, concrete or abstract. You do not have to use words.
  5. When you are finished, take some deep breaths and acknowledge what it feels like in your body right now.

By the way, don’t think that you haven’t got time for this. Even if you’re sitting at your desk, grab a sticky note and a pen and doodle to your hearts content. Making art is good for you. It might even make you feel like you can come out from underneath the blanket and carry on.

References:  Malchiodi, C. (2007) The Art Therapy Sourcebook, 2nd edn. McGraw Hill Publishing.

When everyone else Goes Left, Keep Right.  It might be the harder road but its much more fulfilling.

When everyone usually ‘Keeps Left’, Go Right: My top 3 tips to achieving the fulfilling social work career you want

I read recently that the key to having a fulfilling job is to choose a job with meaning!   I would go further to say that a truly fulfilling job is one that has meaning for a cause you are really passionate about.   I was recently described by a colleague that I was the most passionate person she had ever met – what a compliment!

Up until April, I was working towards creating myself a new dream job at Relationships Australia so that I could travel a bit less and pursue something I became really passionate about – prevention of trauma in young children! In November last year, I resigned from my present position and had two months to find funding for the new project. It was a big risk! If it didn’t find the money I would be unemployed. Prevention work is not something governments are generally interested in funding. April came, I didn’t have any money , and so my work came to an end.

Others would stay on the side of the road they feel comfortable on, but not me. I ‘kept right’ and never gave up on my dream. I really believe that the program I’ve developed can stop the cycle of trauma affecting children exposed to domestic and family violence. I decided to promote the project on my new business website. Then two weeks ago Relationships Australia offered me a second chance. They have re-employed me for three days over the next three months to try again!

I feel so blessed. How many people do you know that are being paid to try to create their ideal fulfilling job?

Here are my top 3 tips to chasing your ideal, fulfilling dream social work job.

When everyone else Goes Left, Keep Right.  It might be the harder road but its much more fulfilling.

When everyone else Goes Left, Keep Right. It might be the harder road but it’s much more fulfilling.

1.  Establish a Trusting Relationship with the Big Boss

From day one, I developed an honest, open relationship with the CEO sharing my hopes, dreams and stories about my past practice that gave her insight into what made my heart tick. I just opened up to what I was passionate about and she developed a job to fit. Along the way, my CEO would pop her head into my office regularly and was always interested in what I was doing. By laying my cards on the table in the first instance, it felt like we had a relationship based on trust that has stood the test of time, even when things got hectic. Believe me, if you don’t have trust in the Big Boss, the passion will soon die! Do everything you can to keep the lines of communication open, no matter how busy everyone gets.

2.  Educate others in the office about what you are doing – the good, the bad and the ugly!

Don’t be scared to share with colleagues, supervisors and Managers what gets you really excited. I believe you should celebrate your successes. It is not bragging. I know that sometimes colleagues might feel threatened by me sharing stories of success and good practice.   However this is an inadequacy they need to deal with.   As a social worker, I feel it is my responsibility to the profession to encourage others to share their good practice stories too, like in group supervision, student supervision, debriefing, mentoring, writing about their practice or more informally. It also takes a lot of guts to admit your faults, where you went wrong and what didn’t work. I think my colleagues appreciate people who approach their work with honesty and integrity. We learn just as much from our mistakes as we do the success stories.

3.  Don’t be scared to take risks; never give up and have faith that it will all work out in the end

Sometimes I have some pretty weird and ‘out there’ ideas. They don’t always get taken up but I still feel free enough to share them and push the boundaries. You never know, one of those crazy ideas might just work! Some people respect me for “thinking outside the box” and not just accepting the status quo. Other people might view me as a feather ruffler. But I know what it’s like to have creativity stifled and it does not lead to a fulfilling job at all.

I’ve had a hundred people tell me my project is needed in remote Aboriginal communities and the resources created are fantastic. All the signs are leading me down this road but I still have one big barrier – money to get it started! I really believe this program will make a difference to the lives of Aboriginal kids not even born yet so I won’t give up.

If you are passionate about what you believe in, you will take risks! Because in the end this isn’t about you. It is about the most marginalised people in our community we are trying to help. And there’s nothing more fulfilling than that!  So my advice is ‘Keep Right’.

Nami connects with children in the community through art and storytelling.

A reflection on Western and Aboriginal World Views in Counselling and Social Work Practice

Nami and Lucy

Caught in a wet season storm at Yirrkala Women’s Centre.

I have the most beautiful memories of my work out at NE Arnhemland. I was amazed by how much I achieved in such a short time, given that I did not have relationships in the communities of Nhulunbuy or Yirrkala. The most special part was finding Nami White who I ended up employing to work with me in the Children’s Counselling program. In 2010 she invited me to go to her outstation at Buymarr for three days. I used the time out bush to document how Nami and I were operating in the space where two worldviews meet and I recently stumbled upon my writings. At the time I really appreciated being able to reflect on my social work practice in this way.   I hope it inspires you to do the same.

A MODEL OF PRACTICE: WORKING TOGETHER FOR HEALING

This document brings together ideas from Nami White and Lucy Van Sambeek who work under the SAAP Children’s Project for Relationships Australia. It aims to show how Yolngu and Western worldviews are working together to bring healing to the lives of children, their mothers and families affected by domestic and family violence.

This document was created from a conversation which occurred while camping at Buymarr, an outstation where Nami often visits and stays with family when she needs some time away from her community of Yirrkala. On this trip, Nami brought her grandson to provide him with an opportunity for counselling and traditional healing to address some of the difficulties he is experiencing in his life.

This process has given us new insight into each other’s world view and an appreciation for what we each bring to the work, what we are doing and how we are doing it. Perhaps these ideas might be of use one day to other workers who are trying to marry Western approaches to counselling with Yolngu methods of healing.

Knowledge

Together we bring a wide variety of knowledge to the work, derived from formal education, life experience, observation and history. We have a shared understanding about the nature of domestic and family violence. Lucy says that:

  • Men are more likely to be perpetrators of violence than women
  • Children are the silent sufferers
  • Drugs and alcohol affect people’s behaviour but is not a cause of violence. We know this because not all drunks are violent
  • Children are affected by being a witnesses to violence
  • Sometimes it is difficult to see the effects of violence in children. The quiet child is not necessarily seen as a child of concern.
  • Parents may not recognise the effects violence has on their children
  • Trauma from domestic violence can have life long effects
Nami connects with children in the community through art and storytelling.

Nami connects with children in the community through art and storytelling.

Nami brings knowledge about domestic violence and family violence watching children and parents in her own community and family. She worked for many years in the voluntary-based women’s night patrol, walking on foot around the community looking out for children. Nami can recognise those children that are quiet and frightened, “don’t want to mix with other children”, and “can’t be who they want to be”. Some children want to be with others but are prevented from doing so by adults who act protectively to keep them away from other children, for fear of getting into a fight. Children take a long time to talk up about their situation with someone they trust – this could be out of fear or shame. They may not want to get into trouble.

Children can take sides with their mother or father depending on what they have been led to believe by the perpetrator. When violence is happening children react different ways, some may try to protect their mother, try to stop the fight and disarm weapons while others may run or hide.

Shame can prevent women from speaking up about domestic violence. Shame can stop men from admitting fault or taking responsibility for their behaviour.   Women are likely to stay in a relationship which is violent as leaving the relationship could bring shame to her and the family. However, if the fear is strong enough women have been known to leave their partners, children and community as they feel they have no choice. They are often seen as the ones to blame.

The Western world would say that formal theories shape our understanding of observations such as these. This includes knowledge about family systems, social learning, behaviour, a holistic view of health, the cycle of violence and trauma responses. Nami also brings knowledge gained from her experiencing of living with a violent and jealous husband. She also knows what it is like to live in a gentle and loving relationship. Living with violence has given her insight into what causes violence, what it feels like to live with violence and what signs to look out for in other women. Nami has seen men become physically sick from perpetrating violence, as a result of the bottling up of guilt and shame. Serious sickness can become a precursor for a change of behaviour in the perpetrator.

Nami has also had two fathers as positive role models who have taught her to be on the look-out for warning signs. Her fathers used to tell Nami stories about times they intervened in family disputes often putting themselves in the face of danger. Their message to her was to practice the same ways, stand up strong to help Yolngu people and live by the lore. With the support of her father, Nami once confronted a hostile man saying “I’m not afraid if you hit me or hurt me”. He taught Nami how to love the enemy. This old man was a respected Elder who knew how to operate in the world of Balanda and Yolngu.

As a girl, Nami also learned about how to live a good life and how to treat other people through women’s ceremonies. We also bring knowledge about recent histories events in Nhulunbuy and surrounding Aboriginal communities, and how these have impacted on the spirit and behaviour of Yolngu people. Nami says the introduction of alcohol has had devastating effects, creating divisions within families, and between the generations, through the perpetration of violence. Elders are sick and tired of the violence caused by alcohol in their communities.

With the introduction of mining in the area, came a system of royalties paid to traditional owners of the land and their families. However, Nami sees that the system is not equal and fair, with the most powerful and greedy landowners, handing out the money as they see fit. The impact of this, filters down to families where disputes over royalty handouts not paid, erupt into bouts of drinking and violence. Traditional values about caring for the land have been replaced with concerns about power and money.

Values and Beliefs

Social justice and human rights are foundational social work values that underpin our work with children and families. Lucy says this is pertinent when working with Aboriginal communities, who continue to suffer from the effects of discriminatory policies and practices from governments. Finding ways of working which reclaim the dignity, respect and self-determination of individuals, families and communities is of utmost importance.

Together we believe:

  • All people including children have a right to feel safe
  • All people have a right to be treated fairly and with respect
  • All people should have an opportunity to make decisions that affect their own lives
  • Violence against any person, particularly woman and children is unacceptable
  • That there is always hope and therefore change is possible.

Nami believes that role modelling her values and beliefs through her behaviour can show people alternative ways of living and being to violence. For Nami this means being gentle, kind and caring, sharing with others; treating others how she wants to be treated; showing respect, and following lore and cultural beliefs. These values have developed over a lifetime but were significantly shaped at the death of her son during alcohol-fuelled violence.   Rather than take revenge against the other family, Nami chose to act with forgiveness and found a non-violent path through prayer. Her commitment to Christian values, gives Nami the strength to “love the enemy”. Nami’s father was also a significant role model who had “love for everyone”. Although her heart has been broken many times, Nami knows that she is a stronger woman today for surviving difficult times in her life. Her drive to help her own people by living out her values is significantly shaped by her life experience.

Skills

Nami reads a book about fighting to the children during a group session on the beach.

Nami reads a book about fighting to the children during a group session on the beach.

It may seem like a basic counselling skill, but attentive listening is so important in this work. Aboriginal people have been ignored for so long, that it would be unjust and disrespectful to continue to impose Western solutions to Aboriginal problems without listening to their own expressed needs, hopes and dreams for change. Lucy’s strengths are also in asking the right questions in ways which are appropriate for Aboriginal communication styles, developing trust and rapport by focusing on building relationships, finding creative and safe ways for people to tell their stories, identifying people’s strengths and supports, linking people in to other services or workers, and having genuine positive regard for people with an open mind and non-judgemental attitude.

Nami feels that she is often at the forefront of family and community disputes as a mediator. Her skills are in using her “voice” in “strong hard ways” so that people get the message that violence won’t be tolerated. She reminds people fighting of their kinship ties and the responsibility this brings. She also knows when it’s the right time to walk away, in order to prevent getting caught up in violence acts herself.

In our counselling work, Nami is instrumental in gaining the trust of children and putting adults at ease, by communicating in her first language about our roles and the work we do. She is a translator and cultural guide for Lucy. Nami knows when it is the right time to talk about difficult issues with children and when it would be inappropriate, by reading intuit body language that looks quite unremarkable to Lucy. Nami’s intuition tells her when a child could become upset, angry or re-traumatised.  Such information is vital for the counsellor.

thyroid

Is medicine failing you? How I healed myself from subclinical thyroid autoimmune disease (Hashimoto’s) with food and a bit of curious enquiry

thyroidIf you are a woman in your 30’s or 40’s, I have written this story for you. You might have thyroid auto-immune disease and not even know it yet. In October last year, I presented to my doctor with bloating and a low grade sickly feeling in my stomach which had persisted for four weeks. I began to use the sofa to take little cat naps during my lunch break and by three in the afternoon I felt like clocking off work altogether. I was jolted when I got a recall notice from my doctor and she revealed I had a Thyroid Stimulating Hormone levels of 5.63 with a normal range of 0.40-4.00. Consistent with hypothyroidism, the doctor advised it’s too early to medicate and would retest me in a month. Although I didn’t realise it at the time, it would also explain the dry hair, fogginess in my head and increased weight gain round my middle. She did say that “lots of women develop thyroid problems at your age” and tried to reassure me that it was easily treated with thyroxine, a synthetic hormone replacement that I would need to take for the rest of my life. Not content to just accept this fate, I set out to educate myself about the thyroid. A friend loaned me a somewhat controversial book “Take Control of Your Health and Escape the Sickness Industry which opened my eyes to the ways the medical profession used thyroxine to solve the problem of the sluggish thyroid. I was shocked but also took the information with a grain of salt. However, curiosity led me to delve deeper.   I consulted with my naturopath who started me on Metagenics Thyrobalance and iodine supplements to boost my thyroid and correct my gut digestion. She also told me that the normal range for TSH in Australia is higher than in countries like America, meaning that a TSH above 2 should start to ring alarm bells. My naturopath recommended I get a food intolerance test from Dorte Peterson at Coolalinga. It is the best $80 I’ve ever spent on my health. The test revealed my gut could not digest wheat, full cream dairy products, caffeine, white sugar, honey, table salt, tap water (unfiltered), as well as pork, the odd fruit or vegetable and 23 different food additives. It was painstaking as I went into Christmas with a reduced list of foods I could eat. But I‘m proud of the fact I was able to give up things I really loved like coffee. And I was starting to feel much better for it. Dorte then put me onto Sandra Cabot’s book “Your Thyroid Problems Solved”.

My second blood test in November revealed a lower but still abnormal TSH of 4.69 and this time my doctor tested Antithyroglobulin with a result of 175 (normal range <61). I had the early stages of autoimmune thyroid disease, where the immune system attacks the thyroid gland mistaking it for an alien body. With more knowledge about what I was dealing with, I advocated with my doctor to treat it naturally. Although my metabolism was being affected, I could still function reasonably well.   The doctor told me it was only a matter of time before I would have to go on thyroxine.

I started sharing my diagnosis with my friends. It seemed every second person I told said “I’m on thyroxine”. I was alarmed. Why were so many women being struck down with underactive thyroids? There has to be a reason and I wanted to find out what it is so that I can treat the cause.

These are just a few of the things I learnt about the thyroid from Sandra Cabot that seemed to be most relevant to my health.

  • gluten is capable of stimulating the immune system to produce autoantibodies. Research shows that a high proportion of people with autoimmune thyroid disease are gluten intolerant. I believe there are women walking around today that don’t even realise they could be gluten intolerant and potentially in the first stages of this disease, as sometimes there are no digestive symptoms at all. I had already given up wheat about two years ago so now I cut out rye, oats, barley and spelt.
  • Casein, the protein in cow’s milk is known to be irritating to the immune system. It promotes excessive mucus production and histamine release and should be avoided if you have a thyroid condition. This was consistent with the symptoms I would have after drinking milky coffee. It just sat on the bottom of my stomach and didn’t feel right. I started listening to my body and realised this felt like subtle heartburn symptoms. Now I use almond or rice milk.
  • Many people are consuming fluoride in quantities that is known to suppress the production of T3 and T4 hormones in the thyroid gland. Fluoride also inhibits the secretion of TSH by the pituitary gland, thereby affecting the thyroid’s ability to secrete thyroid hormone. Chlorine (widely used in water purification) and bromine (contained in a number of consumer products and used in manufacturing industry) also cause similar effects in the body. I’ve made the switch to filtered water.
  • Several pesticides have the ability to disrupt normal thyroid gland function and even cause thyroid cancer. These include chlorpyrifos, amitrole, pyrethrins and pyrethroids, dioxins, PCB’s, EBDC’s and perchlorate. Luckily, I started eradicating chemicals I used in the home and garden quite a few years ago and I try to eat organic foods wherever I can to reduce exposure to pesticides.
  • A toxic build up of heavy metals such as mercury, cadmium and lead in the body can also have a detrimental effect on the thyroid gland. Ironically, I discovered I had a crack in an amalgam filling in my mouth in February. Some believe that amalgam fillings even when undisturbed slowly leak mercury into the blood stream over time.   Was this a coincidence or catalyst? I decided not to take any chances of further unnecessary exposure and flew to Brisbane in February to have all my amalgam fillings removed. Only a holistic dentist, like Dental Wellness can ensure that you are not exposed to toxic mercury gases when the old amalgam is drilled out of your mouth. Most dentists will try to convince you there is no harm involved in having amalgam fillings removed in the dentist chair. Yes, it’s true that science has not proven a danger, but they said the same thing about asbestos years ago.
  • Adrenal hormone imbalance can often coincide with thyroid disorders. Adrenal exhaustion occurs after prolonged periods of stress. Symptoms that I could relate to included fatigue, feeling most energetic in the evenings, low blood pressure, feeling faint, loss of libido, sensitivity to cold, difficulty concentrating and a foggy brain. The last six months at work had been a particularly difficult time causing physical and emotional stress. I knew it and I was taking action to address it including making a decision at the end of 2013 to step down from my FIFO job.
  • Iodine is essential for the production of thyroid hormones. If you eat seafood three times a week and use iodised sea salt you should consume the required amount of 150 mg a day. A deficiency in selenium can also contribute to the development of autoimmune thyroid disease.   In Australia, the depletion of selenium from our soils, means that it is almost impossible to get an adequate amount of selenium in your diet from our crops.
  • Zinc is essential for a healthy immune system. Zinc deficiency has been shown to cause low levels of T3 and T4 in the bloodstream. I have been zinc deficient for many years and with supplements still struggle to maintain healthy levels. It is very easy to test if you are zinc deficient, with a zinc tally test.

These are only a few of the factors that might contribute to the onset of autoimmune thyroid disease.

A lifestyle and diet change made all the difference to my thyroid.

I was hoping that the changes I’d made to my diet and lifestyle would start to pay off. I was rewarded in February when my TSH returned a normal result. I tried to engage my new male ‘science-is-the-only-thing-that-works’ doctor in a conversation about natural treatments for hypothyroidism, only to feel like I was beating my head against a brick wall. I would prove him wrong. In May I advocated to retest my antibodies. The level had dropped to 79 (almost within normal range). I was ecstatic. My doctor remained unconvinced. ‘Where is Cabott’s evidence?’ he asked. The evidence is in the number of patients Cabbot has assisted. For whatever reason, addressing diet and improving digestive function appears to work.

So if you are in your 30’s or 40’s and you have never had a thyroid function test (TFT), I would urge you to ask your doctor for one, especially if you have the slightest symptoms of feeling tired, have put on weight, feel yourself slowing down and feel foggy in your head. The are many other symptoms too. If your doctor says your TSH, T4 and T3 are normal, and tries to convince you there is nothing wrong, look at the results yourself. If your TSH is above 2, ask for a Antithyroid peroxidase and Antithyroglobulin test. In the early stages of thyroid autoimmune disease, your TFT may still ‘appear’ normal but your antibodies may be raised. This will be the optimal time to prevent and treat the disease.  With a bit of curious persistence and addressing your diet, maybe you can also heal yourself from the onset of serious thyroid disease requiring medical intervention.

UPDATE December 2014:  My last blood test revealed my thyroid auto-antibodies are now back within normal range.  There is now no evidence of thyroid disease.  I feel blessed to have healed myself by taking my health into my own hands!

References:   2006, ‘Your Thyroid Problems Solved’, Dr Sandra Cabot & Margaret Jasinska ND.

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Chasing the Dream

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Travelling remote every week takes its toll

So this is my first post and probably my most important.  Some of my closest friends and colleagues are probably wondering what I’ve been doing in the last month?  To understand how I’ve come to be doing what I am today, it’s best to begin this story in November last year.   Unexpectedly, I had a positive thyroid antibodies blood test returned from my doctor.  The comment “Positive for auto-immune disease” struck me at my core.  Hashimoto’s disease as it is affectionately known was causing my immune system to attack my thyroid and affect my metabolism.  That would explain why I was struggling to get through a week without feeling drained.  Travelling every week to remote communities was tiring enough without having this disease to fight against, so I told my boss I couldn’t keep doing my job as a Children’s Counsellor and Community Worker in the Tiwi Islands in 2014.  This was the most difficult decision I have had to make professionally but I had to deal with my health.  Thankfully it seemed I had caught it early and there was hope of treating it naturally before having to resort to taking synthetic hormones.
I desperately didn’t want to leave Relationships Australia NT as I loved community work and I had established a great team of Aboriginal colleagues.  So I put a proposal to them.  Keep me employed for a three month term to find the funding to establish a new program we had been developing called ‘Healing Our Children’.  This would allow me to keep working with the Tiwi communities but without the heavy demanding schedule of travelling every week.  It would also allow me to move into an area of work I’ve become very passionate about – PREVENTION OF TRAUMA.

Now I want to take you back four and a half years.   Since 2009, I’ve been providing counselling and follow up support for many Indigenous women and children who’ve been affected by family and domestic violence.  Indeed, some of the children we were counselling were going straight back home to an unsafe environment!  I picked up strong messages from Elders and women on the Tiwi Islands and in NE Arnhemland that they were worried about their grandchildren.  Much of their concerns related to children’s responses to witnessing domestic and family violence, alcohol and substance misuse in their families, intergenerational and personal grief and loss issues, child abuse or neglect and other traumatic events.  I started talking with a couple of Elders about how we could have conversations with women we knew were living with violence, but would feel shamed and blamed if we talked directly with them about their experience.

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Women’s group – Family Healing Bush Camp 2012

Around this time a number of other things were happening.  We were co-ordinating family healing bush camps, taking our clients out bush and co-facilitating narrative group activities such as the Tree of Life.  It was very obvious to me that being on their country improves the holistic health of the whole family – physically, mentally, socially, spiritually.  Their relationship with the land provided entry points to engage in difficult conversations!   There was also a growing interest towards neurobiological perspectives of trauma which we brought to our counselling work, and I began to teach our Aboriginal support workers some of these stories about what happens to the brain when young children are exposed to violence.  Out of this, grew a desire to collaborate and produce a resource, which would invite women into safe conversations to explore the effects of trauma on children’s development at four stages of the life cycle.  Elders felt that women must hear the ‘brain story’ to give them a proper explanation of why their primary school aged child might be “going off the rails” or their teenager harming themselves!  This was an opportunity for understanding, integration and healing.  The conversations would also provide food for thought about what women might do differently if they were pregnant or had a young baby.  An opportunity for prevention!  And so after an extensive period of consultation, trialling and development with communities in Tiwi and NE Arnhemland, the “It Takes A Forest to Raise a Tree” talking tool was finally launched in August 2013.

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‘It Takes a Forest’ talking tool

Relationships Australia did keep me around until April 2014 to try to find funding to launch ‘Healing Our Children’, but despite my best efforts, funding for this new program was not found.  This program would employ, train and empower local people to run educational support groups using the resources we’d developed.  However, without the funds to keep me any longer, my employment ended.  So here I am, on the road to recovery from my own health challenges and chasing the dream.  I decided to set up …Metaphorically Speaking as a launching pad to make ‘Healing Our Children’ a reality.  I’m just not willing to give up just yet.

It’s time we started looking at preventing the long-term impact that exposure to violence has on the generation being born right now.  I know that I can’t stop the cycle of violence.  But I do believe I can make a great difference in stopping the cycle of trauma, through culturally sensitive education and support of Aboriginal women with children (especially unborn babies and toddlers) who are at risk of exposure to violence.   By stopping the trauma in the first three years of life, I believe we will start to see a decline in behavioural issues in older children, mental health issues including suicide in our youth, aggression and rage, and even criminal behaviour and incarceration, as these children instead grow up to be strong, healthy, functioning and proud Aboriginal men and women.

Relationships Australia NT has demonstrated their ongoing commitment to  ‘Healing Our Children’.  I also have the written support of a number of child and family services on the Tiwi Islands, ready to host this program.  All we need is a funding partner who wants to make a real difference in the lives of children in remote Aboriginal communities.  A small commitment for a pilot project would allow us in partnership to implement a 12 month trial and evaluation.  I am really excited about the potential of this work in other communities across the NT.  If you know someone who shares our passion to stop the trauma, just send them this five minute video clip.  Click here for further information about ‘Healing Our Children’.

And for those who are wondering, I’ll be sharing more about my own journey of healing from subclinical autoimmune thyroid disease in further posts.  I’ve made some amazing discoveries that may be of benefit to others questioning if there are alternatives to taking synthetic thyroid hormones for the rest of your life.